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Lost taste and smell on chemo: Will they come back?

Breast Cancer | Last Active: Apr 24 8:00am | Replies (18)

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@wellgirl

I have been afraid to mention that after three months of chemo, I started having taste and smell distortions. When I complained of a salty taste in my mouth I was told it was from the saline infusions we got with the chemo but three years later, I still get it occasionally and I can't consume anything that is salty or I'll have this salty taste all day. Choclate tastes like lard (bland fat) to me. For me, the smell of butter is repugnant. I kind of knew it was the chemo (especially considering it started at the time of the chemo) but when I have tried to explain it, it sounds crazy! I used to enjoy grocery shopping and cooking but it has become onerous because I have to figure out what I can eat. When I reported this to my oncologist, I was referred to an oncology dietitian. That didn't help. I know good nutrition, I just find so many foods unpalatable. To make matters more complicated, I have been having trouble swallowing foods of certain textures, like bread. When I told my doctor, he just looked surprised and then said, 'Oh that's right, you're gluten free." I'm Not gluten free. I didn't argue with him. He obviously didn't want to discuss it. Then I found out in a support group for women on hormone blockers that lack of estrogen not only causes vaginal dryness but in your mouth and eyes. Obviously if your mouth is dry, swallowing foods like bread is difficult. It probably is also contributing to food tasting off.
Like you sticking to tortilla chips and salsa, my go-to meal is Whole Foods Protein Blends. It's lentils, edamame beans and vegetables. To make it palatable I drown it in barbecue sauce! It's boring but edible. Your validation means a great deal to me! I too will ask my oncologist about zinc. Thank you.

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Replies to "I have been afraid to mention that after three months of chemo, I started having taste..."

Good luck! When it got so bad during treatment when I couldn't find anything to eat, my oncologist told me to drink Ensure. When I said there weren't enough calories in Ensure without drinking a case, he told me to mix it with Whitey's ( a local premium ice cream). He said many of his patients lived on that. Needless to say he's no longer my oncologist for this and many other reasons. I don't think my issue was dry mouth as occasionally I would crave a hamburger (fast food). If I chewed quickly I could eat about 3 bites before the bun tasted nasty (the wheat). Then it tasted like sweet spit. I often pan-fried boneless skinless chicken breasts and ate them cold. I would sit in my chair reading a book holding the chicken in one hand and eat while reading. I was too focused on the book to pay attention to the (non)flavor of the chicken.

Thanks so much for your reply. I have no trouble with the texture or swallowing of foods. I just can't taste................anything! It's like I'm chewing on cardboard or paper all the time. I CAN feel sugary sweet stuff on my tongue. By that, I mean I can tell it's a sweet roll or something like that, but it has no flavor to me at all. No cinnamon flavor or chocolate or anything like that. Meat is tasteless, potatoes, vegys..............all that stuff. It makes me not want to eat. It's like drinking water.................no flavor.

You might try Asian BBQ sauce, sometimes labeled Korean barbecue. May be a change you can taste. Also balsamic glaze or reduction has a strong somewhat sweet taste.