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DiscussionHow do you manage daily life with IBS-D?
Digestive Health | Last Active: Sep 24 1:12pm | Replies (242)Comment receiving replies
Replies to "Has anyone else been diagnosed with IBS-D and motility that is faster than normal? I’m trying..."
I was on Verbazi RX recently and it helped a lot .
75 mg 2 x a day was too much so I did 1 x a day .
Day 3 broke out w/ Huge Rash itchy and big in back and sides , nausea so bad . Had to see Dermo 8 days later , get shot of prednisone and RX cream . Had yo go off med . It was a side effect for me .
Too bad because it really did help the IBS-D .
You can ask Gastro about it .
My GI Dr prescribed Nortryptaline before need to slow down motility. I also read on this blog that someone discovered that a histamine blocker helped with her GI issues. I did some reading and decided to try it. I take one capsule before eating dinner and it has helped with the cramping, bloating, and diarrhea. Between the two and watching what I eat (what I know irritates or triggers my IBS d) I’m doing much better. Most of the doctors I have seen have not helped, except for the Nortryptaline, and I have done much reading to figure things out myself. I hope this helps with some ideas of things to look into!
Hi, I have Crohn’s disease, and the surgery that removed part of my colon along with my ileocecal valve. I have chronic diarrhea which there is not much that drs can do. Thru a chronic Urinary tract infection and irritation of the bladder, I went on a eating plan that eliminated preservatives, additives, acidic foods and low and behold, the belly pain left, it slowed the diarrhea down and I just felt better! I still need to take maybe one Imodium tablet a day. If I’m not going anywhere the next day, I skip the Imodium to see how I do. I’ve also started taking L-Glutamine capsules daily. I take a low dose but it’s shown to help the gut lining. I look on the Mayo Clinic site for info or the NIH.gov to see the studies.
I tried Viberzi and the VSL3 and they both made me sick. With Viberzi, I threw up and with VSL3, I had cramping and diarrhea. I don’t do well on fiber and that because of my surgery and scar tissue.
Everyone is different so I wish you well with what works for you. You just have to be your own advocate because drs are always learning too!
~ blessings
I am so sorry. I also have CVID. (Boy in the Bubble Disease). I don't make antibodies against virus and bacteria so I give myself infusions of other peoples antibodies in the form of blood plasma. In some people with this it does affect the GI tract. It affects some people in their sinuses, lungs, tooth decay. Any place there is bacteria. We infuse gammaglobulin because we don't make enough of our own. It's an immunodeficiency. Also a lot of people with this also have autoimmune disease, which of course, Crohns being one of them.
I’m so sorry!! We all seem to suffer from something or something’s. Blessings to you!
I had SBO surgery in October 2022 and was diagnosed with Crohn’s ,recently I had colonoscopy and it says histological findings are not specific and not diagnostic of Crohn’s ,so my GI doctor sent me to specialist and doctor says he thinks I have Crohn’s ,thinking to go to Mayo and get checked there! What would you do? Advice please ,it looks like my case is rare because mild symptoms and hit me with surgery
Hi, I have that issue. I have Crohn’s and I’ve had my ileocecal valve removed along with 18” colon. My intestines move along like the Indy 500! I don’t want to take antidepressants, or be doped up just so I can sort of function.
I take Imodium every day but if I eat low fat, very low fiber and avoid nitrates, nitrites and other know preservative triggers, then I can skip a day of taking Imodium. I still prefer to stay home just in case my intestines have made plans of their own.
This all started in 1986, several months after the birth of my daughter in 1985.
It’s been a lot of trial and error. Fiber supplements tear my stomach up. So the “eat more fiber” cure all is not for me. Everyone is different so treat yourself as that.,don’t let anyone put you in a box.
My new GI looked at my novel aka chart and said to me that Imodium is the only thing I can physically handle since I’ve tried it all. You have to be your own advocate, after all drs are not miracle workers. They are continuing to learn and that’s a good thing.
I started including an amino acid, L-Glutamine, daily on an empty stomach. It’s not a cure but it seems to help. It doesn’t give me a license to eat whatever, but between avoiding the nitrates and nitrites and processed foods as a whole, I don’t have the pin prick sensation through my stomach.
Sorry about the length of this but I’m just relating my experience. I wish you well in your journey of finding relief.
I have IBS-D.
About a month ago someone wrote on this blog that her gastroenterologist suggested taking one VSL3 in the evening for her IBS.
I’ve been following that advice for the past month and results are remarkable….I haven’t had any loose stools, though I am still careful with my diet.