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Mesothelioma - no known asbestos exposure - compensation experience
Lung Cancer | Last Active: Sep 16 3:30pm | Replies (33)Comment receiving replies
Oh thank you so much for sharing. This has given me some hope that we can slow this thing down. My husband and I decided to take a few days hiking and having fun and hope that I wake up and it all has been a horrible nightmare. Terrible telling the kids.
The oncologist says everyone is different but knowing there are others out there helps.
Good luck on Monday. Keep me posted.
Replies to "Oh thank you so much for sharing. This has given me some hope that we can..."
The news was good. The CT scan shows no change without the maintenance chemo. My oncologist advised that another 3 month break from chemo wasn't risky. The maintenance can slow recurrence when the cancer becomes active again, but nothing cures mesothelioma. I will return for another CT scan in July, and we will make another decision about maintenance chemo then. My oncologist sees several mesothelioma patients, and she has told me about a man in his 80's who underwent the same initial chemo and started maintenance, but like me had bad side effects from the maintenance. He stopped the maintenance and underwent regular CT scans, and went 2 and 1/2 years without recurrence. He is now back in the maintenance chemo saddle, but that word "years" was music to my ears as I am sure it is for yours, too. If your initial chemo arrests the mes as mine did, I would like to think you have reason for hope, too. Best, Judy
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@sueligthart, this is such a difficult time in the process. It sounds like you are doing what you can to find some peace in this storm. Being in nature sounds corny, but it helped me during the early days of diagnosis. It was my place where I could feel the range of emotions and let some of them go. Enjoy your hikes.