So many of you on this thread said so much truth! It’s business as usual with the world, and even loved ones. My family is supportive but kinda of not as concerned as they once were when I started having these all over the place symptoms, like they are over it already. So I don’t even talk or say when I’m not feeling well. I’m alive but have no life. I get so frustrated and honestly a little jealous seeing everyone living happy productive lives.
I also hear “it’s nothing more than the flu” umm hello the flu can be deadly too.
I guess it’s just the human condition, for most people to think, if it doesn’t effect them than oh well…sad.
I decided to participate in a study for Dysautonomia (POTS) in the next couple of months, will be posting my journey on here.
Lack of empathy hits the nail right on the head on how we are being treated, I can’t not tell you how happy and needed this community is for me. This is so hard for us, and who knows how this will turn out for us, for me I had to pivot, where in the beginning of my illness I just wanted to get better and back to pre COVID life, I still of course want to recover but now I had to learn to finding happiness in very small things now, traveling far isn’t an option so sitting outside in nature was always enjoyable but means so much more now. Going to dinner with my family is a triumphant moment. I pray one day I can go off on far adventures again. Feels so surreal that this is our life now right?
I pray every single day for all of you on here, for all of us suffering all over the world with this demon inside of us.
Strength, joy and better health (physical, emotional and mental) to you all! ❤️