Hi there Marcia,
I had tumor in the tail, so I had distal surgery which included removal of spleen in October 2022 with some complications from surgery. Hepatic and celiac arteries showed soft tissue area in December,but it was regarded as scar tissue at that time. I began chemo in January or delayed due to my complications. 12 rounds fulfirnox but no radiation. In November 2023 my CA19-9 starting climbing again at a quadrupling rate. Drs finally did a MRI and EUS-__ERCP in December and found a couple of lesions in my liver and my new “suspicious” masses in my abdominal peritoneun and by the way these areas didn’t show up with uptake on my PET scan. GI dr who did EUS said samples from peritoneum and hepatic artery difficult to get but based on the visual testing of it he suspects those are cancerous, as well as my new UCLA (I switched from Hoag). So I continue on GAC until it’s no longer effective. My tumor tissue currently being tested for CLD-18 protein too see if I will qualify for that trial it’s just something I’ll have ready to go in my back pocket when GAC stops working. Good luck to you on your PanCAN journey. What do you wear on your head now?

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