Yep! I'm a spoonie. It's not easy. Some days I start out with 5 spoons others days more or less.
Others may not always get it, but, that's OK. I have a family & a few close friend that do get it. Most of all my Lord understands.
Being a Type A personality...the hardest part is pacing myself on the good days or I will be flared up worse the rest of the week.
I find that being grateful to the Lord for me is the key. I'm grateful for the days that I have 5 spoons...I'm grateful for the day I only have 3 spoons or less.
I do think exhaustion is as hard to accept as being in pain for me. The days that I have both of them is the hardest and those are my lesser spoon days.
Fibromyalgia, Arthritis all over, Long Covid and both thyroid diseases has caused much pain and fatigue, and other things have worsened this year and I am moving slower and stiffer.
I can put a social event on the calendar, but, folks understand I may not be there.
I recently went to a friend's funeral. It was over 2 hours long and I was exhausted and just wanted to get to my car and go home. Talking and standing around at the graveside was out of the question for me. I just simply had no more to give emotionally or physically. I came home and laid down on the couch and slept for an hour. If I can take a good nap, often I can rejuvenate and get up and do some things....can you relate?
My word for the year is EASE. I EASE into my morning, EASE into cleaning, EASE into preparing breakfast, lunch or dinner, EASE into daily cleaning of house, EASE into paying bills, EASE into a nap and EASE into bed at night....my last spoon is more than used up by bedtime.
I try and find at least 1 person a day to be a blessing too. Quick phone call, card, but most of all praying for them. My daily devotions with the Lord are a priority & my family.
BUT, my conditions aren't terminal, they are just chronic. I am so grateful as I know it could be so much worse when I look around.
God Bless all you "spoonies". I get it! Praying for you.
@covidstinks2023 what a wonderful way to describe spoons and fatigue!! And, I love your use of the term EASE! Rushing into things makes it all worse. Now, if our spouses and families could only understand!