So disheartened

Posted by aaron_az @aaroncush, Apr 18 6:46pm

It’s been a while since I past posted as things had improved with LDN and also becoming a patient of Dr. Brent Goodman at Mayo Phoenix. Of course it was too good to last. Dr. Goodman decided to leave Mayo and move states, Mayo Neurology declined to keep me as a patient, and now I am worsening or the LDN is becoming less effective. My pain is back in force and so far I have struck out finding a new doctor.

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josmay | @josmay | Apr 19 6:07am

has anyone heard of dupuycontracture

John, Volunteer Mentor | @johnbishop | Apr 19 7:30am

@aaroncush, I'm sorry to hear what happened with your neurologist leaving Mayo and moving to another state. Any possibility that you can contact him and see if he might have a reference for another neurologist close to you?

John, Volunteer Mentor | @johnbishop | Apr 19 7:34am

In reply to @josmay "has anyone heard of dupuycontracture" + (show)

@josmay, You might want to connect with @hlp14315 who started the following discussion.
--- Dupuytren's contracture: https://connect.mayoclinic.org/discussion/dupuytrens-contracture-1/

aaron_az | @aaroncush | Apr 19 9:21am

In reply to @johnbishop "@aaroncush, I'm sorry to hear what happened with your neurologist leaving Mayo and moving to another..." + (show)

Hi John, long time no chat. Originally the plan was to travel (couple hour flight or 10 hours by car) and try and see him at the place he was moving to if things got worse. The new place was still covered by insurance when it was announced. Now that the move has happened, the clinic in question has now instituted a $2,200 annual membership fee above and beyond anything else - something I find truly distasteful. I doubt I could reach him now without a credit card or check. I missed that window despite triple checking his new location.

Leonard | @jakedduck1 | Apr 19 11:09pm

@aaroncush
Must have moved to California.
Jake

aaron_az | @aaroncush | Apr 20 3:36am

In reply to @jakedduck1 "@aaroncush Must have moved to California. Jake" + (show)

Nope. He moved to Salt Lake City, UT. The clinic is Metrodora.

snoony2 | @snoony2 | Apr 20 9:17am

In reply to @johnbishop "@josmay, You might want to connect with @hlp14315 who started the following discussion. --- Dupuytren's contracture:..." + (show)

I inherited it from my Dad and had it corrected by a hand surgeon. All’s fine now except for a scar

brotherchuckles80 | @brotherchuckles80 | Apr 20 3:40pm

In reply to @snoony2 "I inherited it from my Dad and had it corrected by a hand surgeon. All’s fine..." + (show)

Hi John. Be aware. I had it done over twenty years ago. My doctor told that it could return. And it has. My fingers are not lot claws when I first had it done. But my pinky fingers are 90 degrees to the remainder the finger and the others are bent to some degree. As long as I am able to still use my keyboard and write my name with some good penmanship, I will remain like this. I am 80 and simply do not want to go through hand therapy after shots or another surgery. With all of this said, I am not rying to deter you from treatment but to be aware. May God bless you in whatever treatment you elect and may you receive long lasting healing. Charles