Description
Join us on the first and third Wednesday of each month at 12pm ET, 11am CT, or 9am Arizona time (find your time zone).
This group offers support and information for Mayo Clinic patients undergoing bone marrow transplants, stem cell transplant and CAR-T cell therapy.
To register, contact Kelly Gemmill gemmill.kelly@mayo.edu
You will receive an invite one week prior to the meeting.
Multiple Myeloma - Stem Cell Transplant folks....
Started my stem cell transplant adventure at the Nashville VA Medical Center this week. So far a number of evals; lots of blood work, MUGA, EKG, PET Scan, Pulmonary, etc. The docs, nurses and technicians are absolutely fantastic - even given my pushback on some of the stuff that doesn't make sense. They will take the time to explain it all - so highly encourage all to ask questions. Something surprises me every day - even if it is a procedure/eval that I am very familiar with. There are subtle nuances in how different medical centers execute tests/labs/evaluations.
The next step (tomorrow) is to discuss the lab work/tests/evals with my nurse practioner and doctor - then start the conditioning injections. There are a number of videos and presentations online to educate yourself on the processes/procedures. The collection seems very straightforward and painless.
Post any questions - or your experiences here for the community.
God bless you all.
Don
Kelly.
the email link does not work to register.
Is there a limit on time when you have to get signed before the meeting starts.
can you join late to access part of the meeting?
who can u contact if you are having issues getting in?
the only phone # to call is the facilitator # who can't pick up to help