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Lost taste and smell on chemo: Will they come back?
Breast Cancer | Last Active: Apr 24 8:00am | Replies (18)Comment receiving replies
How did you get diagnosed by neurologist? Mine had no explanation, except for my post covid syndrome diagnosis. However, I told the ENT and neurologist that the huge metallic taste I got in my mouth happened within 1 hour of taking 1 antibiotics pill! I immediately called the doctor about it. I only took 1 more pill. The taste is now more bitter than metallic.
Upon ENT visit I tested low on smell test and was diagnosed with Taste/smell disorder. I can smell and taste, but it’s weak. Not very keen now. I have tried scent retraining, but it has helped little. I’ve read on this site that scent retraining doesn’t work for them because they can’t smell at all. Idk. I can’t imagine not having any smell or taste. That’s gotta be hard. So sorry!
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@celia16
I knew it was from the antibiotics because it started right when I took them. Then I researched Flagyl and levaquin and lots of issues with possible nerve damage of various kinds. I have a rare hereditary neuropathy that makes my nerves vulnerable to nerve damage. I actually asked my neurologist about it after 5 years and she told me if it had been that long it’s permanent. She didn’t seem surprised. Lots of people complaining of varying and worse nerve damage from those meds.
As for smell, it’s not just missing smelling good stuff, but it’s a safety issue because I can’t smell smoke, gas leaks, mold, rotten food, etc. Yikes! Once in awhile it’s a blessing because people will be complaining of a strong bad smell like a barnyard and I just smile and say “what smell?” as they are gagging. lol 99% of the time it’s a loss though.