← Return to New PMR patient, wondering if mornings will become pain free someday

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@321design

Thanks John. I did read the discussions about how others dealt with tapering. It seems to vary according to the individual. I guess my confusion is about how much discomfort is worth taking less pred. because of the long term side effects. I'm on 7.5 now but have pain until the afternoon. Should I go up to 10 if it eliminates all pain? Of course the test numbers need to be acceptable. I will have this conversation with my rheumatologist in a few weeks.
Activity wise I am used to doing a lot of physical things; exercising, hiking, working around the house and riding. Very hard to not do those things. I am also trying to heal a hamstring strain from a dirt bike fall. I cannot see giving them up.

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Replies to "Thanks John. I did read the discussions about how others dealt with tapering. It seems to..."

I agree, trust your rheumatologist, but be honest with him/her. You should not have to hurt till mid afternoon. My gauge, and my rheumatologist also, is to be pain free, or being able to live your life pain free, within a couple hours in the morning. My doctor added Plaquenil to the prednisone and it made a world of difference. Now I’m tapering the prednisone. Yes, I have side effects from the prednisone but evidently the Plaquenil is the safest, and one of the oldest drugs for PMR and RA. But, as you have read, everyone is different.
Good luck.