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DiscussionLarge Appendiceal NET, well-differentiated
Neuroendocrine Tumors (NETs) | Last Active: Apr 20 11:15pm | Replies (4)Comment receiving replies
Replies to "Hey! How did your doctors diagnose your NET? Did it show up on DOTATATE scan before..."
Hi, I found it during colonoscopy. It showed up as 2cm polyp so close to my appendix the appendix would have to be removed as well. I had an MRI done (without contrast as I was nervous about it) and it didn’t show anything else anywhere except anode they presumed was a cyst on my liver. I watched it he colon nodule for 2 yrs and on next colonoscopy it was still there and very slightly different so I scheduled appendectomy and removal. Turned out it was a large NET. My dotatate scan is currently clear but I still have some symptoms I think are relating. I’m wondering if I should delve deeper to find a tumor? Dr Liu seems to think it’s fine to wait and watch. Curious to know more about others experiences as well. For the record, I had terrible right side pain, cramping, vomiting with my periods from age 17 on…only on occasions. Maybe 5 times before I got pregnant around age 26. I think it’s all related!