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RECOVER-VITAL Screening Visit Set

Post-COVID Recovery & COVID-19 | Last Active: 5 days ago | Replies (34)

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@barbarabell

You are not an idiot.
Remember, somebody has to initiate a study, obtain funding, set up protocols, recruit and screen participants, etc etc. AIDS started in the early eighties and it was a leading cause of death until 1995, when it became a chronic treatable condition. By the way, there is another study coming up for another drug, baricitinib: https://classic.clinicaltrials.gov/ct2/show/NCT05858515

https://www.healthrising.org/blog/2024/01/19/ely-long-covid-chronic-fatigue-baricitinib/

I’d like to get in on that one too.

I am so sorry that you are suffering. I know exactly how you feel.

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Replies to "You are not an idiot. Remember, somebody has to initiate a study, obtain funding, set up..."

Great finds, thank you! These studies are very helpful and encouraging. I agree, there are parallels to the HIV/AIDS crisis. It it hard to imagine now, however how very stigmatised that whole disease was initially and how hard they had to fight. It also took some leading figures outside the community to advance matters. I guess once mere survival of Covid was possible with the vaccines and meds in the acute stages the attention waned - also everyone is so tired of it. But LC is moving at a much faster pace when it comes to recognition by the WHO, and official bodies than previous diseases. It it true however, that conventional medicine as it's taught and those practising it has some way to go, especially in learning new ways of dealing with (female) patients.

I find it disappointing that the pharmaceutical industry isn't doing much in terms of research. I haven't heard that Pfizer are looking into Paxlovid to treat LC.

I, too know how you feel. All of the above doesn't give us much comfort when you're losing years of your life to LC...