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RECOVER-VITAL Screening Visit Set

Post-COVID Recovery & COVID-19 | Last Active: May 12 7:38pm | Replies (34)

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@barbarabell

Let me correct…Stanford is not part of the NIH-funded Paxlovid study. According to @froggiiii above, Stanford was doing a trial that shut down. True, but not NIH funded (not sure what their deal was). RECOVER-VITAL Paxlovid trials didn’t start until after that. If you are interested in seeing if there is a clinical trial near you: https://trials.recovercovid.org/

I remember the AIDS epidemic very well; I remember reading the first article in Rolling Stone when it was called GRID. I see similarities. President Ronald Reagan denied all federal funding for AIDS research because it was ‘gay’. Nobody cared and there was no funding…until it started to show up in the non-gay population and they still didn’t care that much. Now, federal funding for LC is starting to bubble up pretty significantly, but remember the majority of LC patients are women. It only took about three years (heavy sarcasm here) to be taken seriously. If the majority of LC sufferers were straight, white men, there would already be a treatment and extensive study. Am I the only one to have been pretty definitively diagnosed at one time as ‘hysterical woman who needs Prozac’? Think a man would have been diagnosed that way?
Whew! I still have so much anger!

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Replies to "Let me correct…Stanford is not part of the NIH-funded Paxlovid study. According to @froggiiii above, Stanford..."

Bsquared,
As you can tell, I am angry too.
I remember all that you say about AIDS.

I have been offered SSRI almost exclusively for my LC symptoms.
I finally have doctors who take me seriously, but it took me two years and a long wait to get seen by this group.
They haven’t found answers for me, but they treat me with respect and TRY to help.

Sometimes I think it’s my anger that has kept me going this long!