The Burden of Getting Medical Care Can Exhaust Older Patients
I found this article very thought provoking, and wanted to share it. Have you experienced what the title says--getting exhausted just from setting up appointments and following treatment plans? And on a more positive note--do you have any tips or systems you can share?
https://kffhealthnews.org/news/article/medical-care-exhausting-older-patients/
KAISER FAMILY FOUNDATION (re-print from Washington Post)
NAVIGATING AGING
The Burden of Getting Medical Care Can Exhaust Older Patients
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I know what you mean!!!! I lived in Florida for ten years and many doctors were going "concierge". One has to "subscribe" and pay an annual fee to be part of their patient base. Fortunately, here in Minnesota I have not encountered the problem. But primary doctors belong to big organizations, and it takes months to get an appointment. Otherwise, they send you to Urgent Care. I have found my way around that. I self-refer to whatever specialist I need ...why ask my primary care doctor about something he/she has limited knowledge in?
I do the same. My primary care always tells me, "Oh that's not in my knowledge base, you need a specialist." So I just skip her now and go to her for pill refills and blood work and whatever silly exams they say I need for Medicare. I am truly thinking about a concierge doc but I'll be checking them inside and out before I go. Just because they're boutique doesn't mean they're good. Best of luck to you. Sounds like pretty much the same story from sea to shining sea. Take care.
I feel exactly thw same way
@brandysparks From the National Cancer Institute, here is their definition of a patient navigator: https://www.cancer.gov/publications/dictionaries/cancer-terms/def/patient-navigator
I have used a patient navigator before, and am not aware of being penalized for doing so. But you just gave me an "uh-oh!" moment, to be sure!! Frankly, it is so hard for an individual to be up-to-speed on how to muddle through all the hurdles we face when we have health concerns, knowing the correct procedures or the right steps to take to get things done. I have found having someone to help me through the forms/paperwork/steps can be a blessing. And once when I had to contact such a person because I felt I was getting nowhere with a situation, things were resolved very quickly!
It seems things are constantly changing in the medical care community, and being able to access someone on the inside to help us, is invaluable. Besides being called a patient navigator, some organizations may instead use the title social worker, or patient advocate.
Ginger
@gingerw - Thanks so much, Ginger!
I had, in fact, seen the term "patient advocate" many years ago when my father was in the hospital, and recently "Patient Navigator" at the Ob/Gyn Onc's office.
It makes sense, and glad to hear it has been so helpful for you. I'll keep it in mind going forward.
Thanks and good luck to you too.
I value the honesty of my primary care doctor when he says he doesn't know. I use him to review certain test results since Specialists frequently don't tell you about other things found in tests like CT scans when it is outside their own area. And having several specialists, I am trying now to organize my blood work schedule to be sure nothing falls through the cracks.
One really has to take responsibility ...on several occasions I have been given drugs that impact other drugs...not the nurse not the pharmacy said a word ...but I always check the interaction between drugs
Totally scary. I have some friends who take pills with full trust that their docs are checking drug interactions. I certainly did the same when I was younger, but haven't in years. I ask them and then I check myself.
Good idea to ask for what you want with the labs. That's a bit more of a challenge if you aren't trained in the field, but certainly worth at least checking into. For instance, I have seen many different lists of tests that one should take to help verify PMR mostly by ruling out other things, which is, of course, vital. Could change everything if a lab was missed that confirmed another disorder.
I'm 82 and I have a Medicare Supplement that is great! I recently had breast cancer and a horrible pain in my hip. I am fine now due to the many specialists I worked with.. I live only 4 miles away from the hospital and medical center, so I am probably lucky that way. The hardest part is finding a general practitioner who will take Medicare. I was lucky that my husband already had a general practitioner who took Medicare and I was grandfathered in.
My health insurance even gives me rides to a anything medically related.
Hi, Christine. Yep, the ride up and down the Malahat 'pass' is interesting. I don't know when you drove it last, but they must have spent $50M on it in the past five years adding lanes to keep the accidents down. Then, two falls ago when the Atmospheric River hit and practically wiped out the lower mainland, there were two huge washouts of the newly completed work...another $2M to repair. Hopefully re-engineered as well...
Yes, the episode of "mountains over man" made our news too!
They showed how the new roadway made an impressive waterfall cascading down the mountain! More millions washed away!
So treacherous yet so beautiful!
So glad you had a safe trip home!