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HIV and Neuropathy

Neuropathy | Last Active: Apr 20 9:14pm | Replies (4)
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@johnbishop

Hello @tomdeleo, I would like to add my welcome along with @kaylin7 and others. The Foundation for Peripheral Neuropathy has some information on their website that may provide some information for you here:

-- https://www.foundationforpn.org/what-is-peripheral-neuropathy/causes/inflammatory-neuropathy/hiv-aids/

Some of the common causes of neuropathy are certain medications – especially those used to treat cancer and HIV/AIDS. Are you taking any medications that may be causing the flare ups?

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Replies to "Hello @tomdeleo, I would like to add my welcome along with @kaylin7 and others. The Foundation..."
tomdeleo | @tomdeleo | Apr 19 8:32am

It is true that early meds (late 90's) that were used against HIV could cause Neuropathy, but I was never on those meds. After numerous Neurogists, it was determined at Johns Hopkins that even in well controlled instances that HIV can still cause nerve damage. I accept the fact that my neuropathy is caused by HIV but I'm looking for some explanation as to why it affects my gut, headaches and muscle pain. I do take Baclofen and Lyrica as well as several nutritional supplements. Thank you for your help.

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