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ADT. Afraid of it

Prostate Cancer | Last Active: Aug 15 4:46pm | Replies (42)

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@tnola123th

There are side effects. Everyone is different. I had tried Orgovyx in July 2022 and had heart POUNDING - written as "palpatations" as "protocols do not allow the word 'palpatations'..." I went to q.o.d. and same number of pills but 6 days later....again, the pounding. Stopped til Feb 14 2023 when told I had to try it to get to 2nd drug and then chemo or clinical trials all of which were off limits unless you do ADT first. So this time started q.o.d. instead of with 3 first day. That was fine for two weeks but when I went to every day---same issues except no pounding and I made it to April 8 2023 or so and the build up of "on edge feelings" and list below PLUS foegetting to take it acouple of times made my doctor stop it. We meet next week to talk.
I had extreme nightmares, not so bad hot flashes, anxiety, brain fog, put things in the wrong place like bowl of instant oatmeal in the cupboard next to the microwave, balance issues, peoples's names and object name loss, felt tight in the face a lot. Some men don't have these and others, and some men have worse.

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Replies to "There are side effects. Everyone is different. I had tried Orgovyx in July 2022 and had..."

Wow. That sounds concerning. I have had heart attack history and the cognitive stuff is really worrisome. But I appreciate you sharing.
I’m trying to come to terms with trying to kill the cancer and risk suffering along the way. Quality of life weighs heavy for me.

I’m also very concerned about Mood swings and mental hell.