← Return to Hyperbaric Therapy for MAC lung disease

Discussion

Hyperbaric Therapy for MAC lung disease

MAC & Bronchiectasis | Last Active: Apr 21 8:10pm | Replies (9)

Comment receiving replies
@sharonji

I too have wondered about HBOT. I was diagnosed 11years ago at Mayo by an amazing Dr Margaret Johnson. I was treated with trio antibiotics, did well & taken off after a year with MAC considerably reduced.
Last April after suddenly coughing up blood with no other symptoms I was hospitalized & absessus of lung was discovered. I received IV amikacin via Picc line for a 3 months but my heart rate & BP was irratic. I then went on oral trio, nebulizedARIKAYCE, nuzura & azrithromycin. Nuzyra gave me flu like symptoms including fevers & sweats & was switched to clofazamin.
I’ve since developed considerable tinnitus & stopped antibiotics altogether.
I’m 69 year old otherwise healthy active female, good appetite maintained with no weight loss.
I’m searching for any healthy support available eg., HBOT along with Dr recommended supplements.
HBOT is offered in my area
10 sessions 2,500
20 sessions 4,500
40 sessions 8,000
Any input would be greatly appreciated .
Sharon Sloane

Jump to this post


Replies to "I too have wondered about HBOT. I was diagnosed 11years ago at Mayo by an amazing..."

What do your doctors say about trying Hyperbaric treatment? Do you still have active M. abscessus?
There still doesn't seem to be any good research on NTM and HBOT, but there are articles saying HBOT can reactivate latent Tuberculosis, which is another, closely related Mycobacteria:
https://pubmed.ncbi.nlm.nih.gov/29862947
Sue

Did your tinnitus resolve? Thanks.