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Trying to get perspectives on what comes next

Prostate Cancer | Last Active: May 2 1:36am | Replies (24)

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@gently

Shep247, the biopsy you want is a transperineal MRI fusion ultrasound guided biopsy. You might check to see what type of biopsy you are scheduled to have.
With Gleason 5, you will probably need treatment.
Following the biopsy you would have a PSMA/PET.
From the biopsy material you should request somatic testing of the genetics of the tumor. It will give you the mutations particular to your tumor. And give you an indication of the cancer's aggessiveness. There are several of these tests. The one I am most familiar with is Decipher.
All of this testing might take several months. Collect all of your records including images from the biopsy and PET scan. Because when you have finished testing you'll want to see a medical oncologist, surgical oncologist and radiation oncologist and a radiation specialist in proton radiaton in order to understand your best treatment.
I think it's best to look at the oncologists online and decide who you want to see. You can self-refer with your records, or ask your medical provider to refer you. It is faster to self refer. You can have zoom appointment which is easier if you want more opinions.
The next couple of months are a bit of a drag because you want resolution, but they can be important especiall if you provider wants you to be on ADT. Two months is supposed to be the best amt of time to take androgen deprivation therapy before radiation or surgery.
Keep posting back with new questions. This is a really good site.
Best luck.

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Replies to "Shep247, the biopsy you want is a transperineal MRI fusion ultrasound guided biopsy. You might check..."

Many thanks! This is some good information I hadn't thought of and I sure appreciate the guidance!!

Wonderful and helpful comments.