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I was diagnosed recently with osteoporosis.
Osteoporosis & Bone Health | Last Active: Apr 20 5:03pm | Replies (25)Comment receiving replies
Thanks so much for this information! My urine calcium was in the 800’s and the rheumatologist says that exactly why my score is so low. I haven’t done another 24 hour urine test yet but fingers crossed that it’s much better now. My vitamin D level is actually very good and I have added potassium to my daily intake. Is there any chance your urine calcium level will continue to improve on the diuretic? My doctor told me I will need to be on one for the rest of my life.
Replies to "Thanks so much for this information! My urine calcium was in the 800’s and the rheumatologist..."
Urine calcium in the 800's is rough. While your urine calcium will come down a bit over time while being on a thiazide, about the best I have seen in trials is 50% reduction. 400mg is still too high to build bone. I highly recommend you watch this video from this really good nephrologist on idiopathic hypercalciuria https://www.youtube.com/watch?v=FN9VWgCda8c . You probably want to see someone like Dr. Coe that specializes in nephrology and kidney stones.
That all said, I'm surprised your T-scores have been stable over your testing period. Perhaps the high urine calcium is recent or a messed up measurement.
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Before I started Tymlos, during my first visit w/Endo, my Calcium and VitD levels were high. At the time, I was taking 1200 mg of Cal/day and 10,000 IU of Vit D/day plus that from normal low fat, high dairy diet.
My Endo made me to cut it down to 600 mg every other day and vitD 1000 IU every other day and same dietary calcium and VitD, before starting Tymlos. I am continuing the same regime for the last 18 months of Tymlos and Calcium and VitD #s are within the range.