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@windyshores

@janetsimmons what are your other DEXA scores? Please include the minus sign 🙂 My reports always say that the femur neck should not be used to measure change, and also that a change of .5 or more is significant. I have kept a chart of my DEXA's since 2001 and they jump around a bit, even with the same machine.

That said -3.2 isn't great either. Like you I felt strong- though my scores were a bit worse (spine -3.6) and although I kept trying to get on meds, I could not tolerate Forteo or Fosamax, which were the only ones available, and went many years without meds. Starting Tymlos was delayed by COVID and I had several spinal fractures. They are painful and disabling.

So I wonder, why not do a medication to get back to osteopenia? I did Tymos due to the adjustable dose, and ramped up to get my body used to it. I went from -3.6 to -2.5 in a year and a half. Evenity works fast and many don't have side effectss. I am doing Evenity after Tymlos. Personally I liked Tymlos better: the medicine leaves your body in a few hours, but may are doing well on Evenity.

I don't know much about excess calcium excretion. Are your kidneys okay? Are you ingesting too much calcium? Or has your metabolism gone awry? Certainly figure that out before treatment. Tymlos may make calcium higher, and Evenity may make calcium levels lower.

It looks like you have had little change, but that could be a DEXA error either way. The thing is, even at -3.2 meds could help you. Avoiding fractures is like Russian Roulette. You might win, or lose like me!

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Replies to "@janetsimmons what are your other DEXA scores? Please include the minus sign :) My reports always..."

My scores in 2010 were
Lumbar spine -2.2
Left hip -3.2
Femoral neck -3.2

In 2022
Spine -2.3
Hip -2.8
Femoral neck -3.4

Both scans performed at the same facility.

I definitely have idiopathic hypercalcuiria and not any kidney disease.

For some reason my dr wants to go straight to evinity instead of anything in pill form. I’m so happy for you being able to rebuild your bone density so much!

I have heard that spinal fractures are nothing to sneeze at. Literally. I can’t imagine being out of commission for the length of time that must take to recover from!