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Did anyone test high for CA125, with elevated value of over 800?

Gynecologic Cancers | Last Active: Apr 23 5:35pm | Replies (15)
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@califcheryl

I have a similar chemo. cyst. Size of a grapefruit. My CA 125 was2261. In early feb.
They did a PET scan feb 15th which more formally detected cancer cells.
Have had two chemo infusions so far and my CA 125 after first round jumped down to 1009. Doc says this is the number they watch to get indicator on progress of chemo. I also had alot of ascites-abdominal fluid. Been drained 3 times..9.4L, 6 L, and 8 L..about 3weeks apart. I was so bloated and felt like I was 7 to 9 months pregmant. They tested this fluid and also confirmed cancer cells. Fortunately the cancer cells seem to all be contained within abdominal cavity. I am scheduled for 4 chemo
3 weeks apart and then full hysterectomy..I am 67 yrs old. So do not need any female organs any more! and then a few followup chemos. After surgery. @kristinfloyd1 This might be helpful to you

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Replies to "I have a similar chemo. cyst. Size of a grapefruit. My CA 125 was2261. In early..."
charlotte12 | @charlotte12 | Apr 18 6:34pm

thank you for your sharing your story, my oncology doctor never suggested a PET scan,
what was the reason for doing chemotherapy first?
My dr. wants to do full hysterectomy, removal of mass, remove ovaries, test tissue during surgery for cancer with tumor markers during surgery, potential remove tissue, more ovaries which may be effected, the ultrasound showed mild pelvic fluid,
I'm 69, I wonder now if I need a second opinion. I only felt bloated after a meal. I have to overcome my cold before getting the surgery. Please respond back.

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