← Return to Azithromycin, Ethanbutol, & Rifampin Drug Therapy for MAC

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@nonamebrand

If I could afford Mayo or NJC that's where I'd be !! But that's not the case .I have now four id Drs who are not treating me like a person but a disease only .Getting shuffled around from one to another and all they do is compare notes from last follow up ...nobody on the same page .Different Dr different protocol ,don't know who to trust anymore .
Didn't want to take the antibiotics but the weight loss I suffered is going to be my death not ntm .it's called cachexia .I'm down to 78 lbs ,Trying to put me now on antidepressant for the forth time and I can't take those .Weird is after I did research on this one it is not compatible with any other drugs I'm taking ,so I won't touch them ....I have no appetite on these antibiotics and am having a very hard time .I have or had no symptoms at all except weight loss and should have waited until I put on a few lbs more to start .I'm at a total loss at what to do ???😥

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Replies to "If I could afford Mayo or NJC that's where I'd be !! But that's not the..."

Hi Noname,
When you’re down to 78 pounds that’s a concerning situation. You should seriously consider having a consultation with Michelle MacDonald. She is the nutrition supervisor at NJH and also has a consulting business. I know many people who have gone to her and found it extremely helpful. If you are interested, I can give you her contact information.

Best,
Linda Esposito