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Antichromatin antibodies

Autoimmune Diseases | Last Active: Apr 22 4:18pm | Replies (10)

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@mkempson42

Yes after my nasal reconstruction sx I developed these sores on my face on and around my nose and thought this was the result of dissolvable suture that didn't dissolve and my body was rejecting back out through my skin bc that's what it felt like. Heart failure at age 33 with fatal low potassium level, brittle bones with numerous fx's, leg swelling, enlarged left atrium with regurgitation of mitral and tricuspid valves, hyperpigmentation on my face and chest. There a 3 people on my fathers side with Crohns disease and one person dx at this time with Hashimoto's on my mothers side. I believe I have numerous autoimmune disorders besides sle. At the moment I'm having to see a cardiologist for postural orthostatic tachycardia. I had allergic to sulpha first at around age 10 also.

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Replies to "Yes after my nasal reconstruction sx I developed these sores on my face on and around..."

Marcy, you have so much going on and I am sorry your problems have not gotten someones full attention! Some connections and questions for you: did the cause of your CHF get figured out? The most likely guess is it could be a cardiomyopathy which is autoimmune. The atrial enlargement is likely due to the mitral regurg, since blood is leaking through that valve, flowing backwards into yhe left atrium. Of potentially more concern is the tricuspid regurgitation which could signal pulmonary arterial hypertension (PAH). These issues should all be addressed by the cardiologist. PAH is treatable and early detection and treatment is important, so you should get a lot of mileage out of the cardiologist consult. The POTS will also be addressed there.
I’m wondering if you could have a malabsorption issue (low calcium, potassium) if those are still a problem. Hashimotos is treatable also. Perhaps the cardiologist can help you get a good rheumatologist to deal with the possible SLE, likely causing the hyperpigmentation and perhaps nose sores. Keep in mind that I am speculating here and just trying to make sense of some of your concerns. Please keep us updated on your progress. I think you’re on the right track and on the brink of getting much needed help!