How will I know if symptoms are a possible reccurence?

Posted by Rom828 @jgallagher04921, Apr 15 1:08pm

I'm curious about symptoms of reccurence. I had a double mastectomy and am on an AI so how will I know if I'm having AI side effects or pains are actually reccurence. Anyone care to share their reccurence stories?

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@sirene how far out from diagnosis are you?

I asked my oncologist about Signatera and they said they don't do it unless recurrence is already present.

I am 9 years out but as you know, risk continues to rise with hormonal cancers.

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@windyshores

@sirene how far out from diagnosis are you?

I asked my oncologist about Signatera and they said they don't do it unless recurrence is already present.

I am 9 years out but as you know, risk continues to rise with hormonal cancers.

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I am 18 months out from diagnosis. You may be able to order the test yourself directly from Signatera. They send a phlebotomist out to collect your blood. They do need to get your tumor sample as well. The hospital usually has it for years and years, so check into that .

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@windyshores

I am more than 9 years out and still don't have any idea how we can ever tell we have a recurrence. Most people I know have found out through testing or imaging for something else. If you are still on an AI, maybe you can take a holiday on worry. I finished 4 years ago and miss the relative security!

Many of us are older and have arthritis, stenosis, all kinds of pain. Twice I have requested an x-ray of a joint and my oncologist just tells me to go to the PCP.
Good luck to us all!

Hope someone comes along to share their story.

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Get a CA27.29 blood test at least every 6 months.
Tumor markers can indicate the presence of cancer.

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@ebtexas55

Get a CA27.29 blood test at least every 6 months.
Tumor markers can indicate the presence of cancer.

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My doctors don't do these. It's been so long I don't even remember why. I am very proactive with health but cancer has been on the back burner!

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@sirene

I am 18 months out from diagnosis. You may be able to order the test yourself directly from Signatera. They send a phlebotomist out to collect your blood. They do need to get your tumor sample as well. The hospital usually has it for years and years, so check into that .

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@sirene I have used my tumor samples many times since diagnosis. I am practically on a first name basis with lab folks!

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@windyshores

@sirene I have used my tumor samples many times since diagnosis. I am practically on a first name basis with lab folks!

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Great! Lol

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@windyshores

@sirene how far out from diagnosis are you?

I asked my oncologist about Signatera and they said they don't do it unless recurrence is already present.

I am 9 years out but as you know, risk continues to rise with hormonal cancers.

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Yes they do, AND with STRESS!

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