1. < Neuropathy

Treatment options that have worked for Small Fiber Neuropathy

Posted by moakes @moakes, Feb 27 9:32pm

I am a new member to the Neuropathy group and looking to find information about what has worked for others to reduce their neuropathy pain and improve their condition. My pain started a few years ago in my forearms and spread to the rest of my body in September of '23. I was diagnosed with SFN in October. I've had some pain relief from Lyrica + Cymbalta, but pain in my feet is getting worse making it painful to walk. Been trying acupuncture, dry needling, and PEMF as alternative treatment but no noticeable improvements to date.

Interested in more discussions like this? Go to the Neuropathy Support Group.

NJ Ed | @njed | Apr 17 1:20pm
In reply to @johnbishop "Hi Ed, I have seen a few posts in the groups Facebook page by doing a..." + (show)
@johnbishop

Hi Ed, I have seen a few posts in the groups Facebook page by doing a search of the group but like Connect it seems like everyone is a little different. From the FAQs on their website;
"Will this help any type of peripheral neuropathy?
Yes. Peripheral nerves respond exceptionally to this nutritional supplement formula that supports accelerated healing. Short fiber & long fiber axonal damage are encouraged to heal faster."
--- https://theprotocolworks.com/faq/

I wished the Facebook groups were a little more friendly for new members questions but I understand why they expect everyone to search the group posts before asking a question. You can join the FB group using the link on the website and search through posts. I did find a response to a member from the person who started the group mentioning his diagnosis of peripheral poly neuropathy involving the long and short fiber nerves.

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John - As always, thanks for your help!! Very much appreciate your advice and knowledge. Ed

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26sabrina | @26sabrina | Apr 18 10:38am
In reply to @cherbear2cubs "There is proven correlation of statin use and neuropathy according to studies by NIH. I tried..." + (show)
@cherbear2cubs

There is proven correlation of statin use and neuropathy according to studies by NIH. I tried taking a break for 3 months from simvistatin but my lipid levels increased so went on small dose of rosuvastatin, no changes in neuropathy symptoms. It is the lesser or greater of 2 evils if you should take the statins. I am currently using red light therapy, exercise and CBD topical. I use CBD drops and melatonin for sleep.

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My cardiologist switched my stating to Zetia which works differently. My LDL lipid went down. Though it hasn't helped my PN yet, we do believe it may keep the PN from getting worse.

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1 reply
captboat | @captboat | Apr 19 4:58pm
In reply to @26sabrina "My cardiologist switched my stating to Zetia which works differently. My LDL lipid went down. Though..." + (show)
@26sabrina

My cardiologist switched my stating to Zetia which works differently. My LDL lipid went down. Though it hasn't helped my PN yet, we do believe it may keep the PN from getting worse.

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Advanced Nerve & Laser Center
They were in Corinth, Tx but have since moved to Dallas and Houston. I was promised 50% improvement but I feel it was more like a 65% improvement. It was very expensive then $$$$$ and that was some time ago.
Like all man made things that treatment does not last forever.
THERE IS NO PERMANENT CURE FOR WHAT WE HAVE…NEUROPATHY!

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2 replies
suetex | @suetex | Apr 20 11:02am
In reply to @captboat "Advanced Nerve & Laser Center They were in Corinth, Tx but have since moved to Dallas..." + (show)
@captboat

Advanced Nerve & Laser Center
They were in Corinth, Tx but have since moved to Dallas and Houston. I was promised 50% improvement but I feel it was more like a 65% improvement. It was very expensive then $$$$$ and that was some time ago.
Like all man made things that treatment does not last forever.
THERE IS NO PERMANENT CURE FOR WHAT WE HAVE…NEUROPATHY!

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Without specifying what kind of neuropathy we are talking about, I don't see how that statement can be made.

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26sabrina | @26sabrina | Apr 20 11:11am
In reply to @captboat "Advanced Nerve & Laser Center They were in Corinth, Tx but have since moved to Dallas..." + (show)
@captboat

Advanced Nerve & Laser Center
They were in Corinth, Tx but have since moved to Dallas and Houston. I was promised 50% improvement but I feel it was more like a 65% improvement. It was very expensive then $$$$$ and that was some time ago.
Like all man made things that treatment does not last forever.
THERE IS NO PERMANENT CURE FOR WHAT WE HAVE…NEUROPATHY!

Jump to this post

I am involved in an Integrative Therapy where I have added different supplements PT for neuropathy. The PT exercises can be found on YOUTUBE. All of this has really minimized my symptoms. I know that so far there is NO CURE but I remain hopeful that someone will find it. In the meantime I do my best to live with what is available now.

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bobweller | @bobweller | Apr 20 2:04pm

There areca few therapies you can try. TENS, infrared light, massage, various creams.

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