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Cushings Disease - What were your cortisol and ACTH test results?
Diabetes & Endocrine System | Last Active: May 29 4:16pm | Replies (16)Comment receiving replies
Wow, that's horrible! Yes, very similar. I also had frozen shoulder. I was tested for Sjogrens and other autoimmune, all came back negative. I also felt like my guts were burning all the time back then. Yes, I definitely think nerve damage is involved, that's what i think caused the POTS. I also have Reynauds, but not the autoimmune kind, that started with all of this. I also tend toward hypoglycemia at times, after I eat sugar or after exercising. I passed my 3 hour glucose tolerance test last year, but my scores dropped rapidly. First hour, my score was normal, then dropped to 55, then 27 the last hour. I almost passed out. Primary care doctor's response was "Wow, your body is good at clearing sugar". I should have been in the hospital with a score of 27. I immediately found a new doctor. What is your ethnic background? I am a German Mennonite. Wondering if there's something there?
Replies to "Wow, that's horrible! Yes, very similar. I also had frozen shoulder. I was tested for Sjogrens..."
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Yes!I had the feeling of acid in my guts too!It was just awful.I remember going to the ER and the nurse saying that I must have a hernia because of having to walk hunched over.Whatever this is that got us attacked everything.Maybe because of going through the menopause it causes so many issues that it really attacked our GI and adrenal glands.My cousin who was a marathon runner got diagnosed with POTS as well.She got really sick when she was training.She has to wear a neck brace and can't drive anymore.She was in the Best shape of her life!I almost feel like the people that really took care of themselves got hit the hardest.I am German and Irish.I definitely think Ethnicity could be a factor.We also have alot of Lupus and Thyroid Disease in our Family.So I got my Dexamethasone test back and my ACTH1 and Cortisol were marked as extremely low.My Cortisol was 0.2 and my ACTH1 was 1.I know that Dexamethasone can lower it,but that seems extremely low.I basically had zero cortisol after the test.I just don't understand what this is I have.I thought for sure the test would come back elevated for Cushings with my extreme weight gain,muscle weakness and other unusual symptoms.I have had thyroid disease forever and this is way beyond that.