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Zometa, ONJ, when is it really necessary?
Breast Cancer | Last Active: Apr 28 12:57pm | Replies (24)Comment receiving replies
I was diagnosed with MBC in my sternum ( destroying the bone) , liver, lymph nodes in Jan '24
On Letrozole and palbociclib.
Last week got my 1st infusion of Zometa....48 hrs later BOOM, both knees ( with osteoarthritis) blew up to double in size and I could not walk! They prescribed pain medication over the phone, they couldn't believe this was caused by Zometa!
Today is my 3rd day since getting around in a rented wheel chair and I can now get up from a chair without hubby's help. Still very swollen knees that can't straighten out yet. I'm very hesitant to try Zometa again in 3 months. Did anyone else have a strong reaction to Zometa?
Replies to "I was diagnosed with MBC in my sternum ( destroying the bone) , liver, lymph nodes..."
My MLBC to a vertebrae is MBC to bone, w/ a 2cm lesion on Vertebra discovered in12/23. Zometa was suggested to me even though the scan in March showed no change. It appears to me it's just protocol to a certain degree. I am very healthy except for having had crummy misdiagnosis and substandard surgeries for LBC in Florida since 2012. So I have had no chemo, some radiation after I found a tumor in left armpit (all BC was in left breast only, but had double Mas.
I am estrogen positive so take low dose Anastrozole since 1/23 and I take very good Bone Desnsity natural Pill by Jarrow along w/ there D3 that has K in it....and other holistics. I feel fine, and questioned the Zometa --PA said it was to avoid bone fractures in the future. Im 62.
I have a lot of dental work and had oral bone & gum issues for a long time. So I am worried about the ONJ & see Dental Specialist for a consult on my teeth/bone health. I feel if I eat very healthy which I have bascially , but will be even more vigilant w/ good calcium, etc. supplements and foods....I can monitor my status as planned every 3 mos.
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Can you do Reclast in smaller doses more frequently (or Zometa, they are the same drug but different dosing). I am doing 1mg (20% dose) but every 3 months- for bones so not sure it will work with MBC. I had BC but not MBC.