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Something new in the treatment arsenal?

Breast Cancer | Last Active: Aug 7 11:34am | Replies (61)
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@leeann66

Good morning, just a little update on my recent scan.

As a reminder I was diagnosed June 2020 de novo stage 4 breast cancer, HR+, HER2- (now considered HER2 low) Mets to bones in 7 places.

Kisqali and Anastrozole for 16 months, was NED then progression.

Also monthly XGeva injections which I still do.

Switched to Afinitor and Exemestane for about 6-8 weeks, had to stop due to bad rash and breathing trouble, continued disease progression.

Went on Xeloda for 6 months, didn’t work, continued disease progression.

Started the Tropion 01 clinical trial, phase 3, November 1, 2022.

Recent scan shows no sign of bones Mets, no sign of initial breast tumour, 3 lymph nodes still showing but have shrunk from initial scan and have remained the same size for last 6 months. Dr said it might actually be scar tissue and not cancer.

No new lesions or any evidence of disease elsewhere, all major organs continue to be clear!

Grateful for the Trial, Dato-Dxd and my medical team at the MUHC here in Montreal!!

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Replies to "Good morning, just a little update on my recent scan. As a reminder I was diagnosed..."
Zebra | @californiazebra | Apr 17 10:23am

@leeann66
Wow, LeeAnn, that is truly amazing!!! I’m so happy for you! Thanks for the update.

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eku | @eku | Apr 18 4:30am

I'm so happy for you! Thank you for sharing this wonderful news with us!

(Quick question: The new progressions, were they all in bones?)

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mossa | @mossa | Apr 18 6:45am

You are a warrior! You go girl! Your tenacity and bravery gives all of us hope!Many, many thanks to you for this wonderful gift and sharing this new strategy with us.

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anjalima | @anjalima | Apr 18 7:32am

Soooo Happy for You! Great news for you and for all of us who may also need this treatment! Thank you for your generosity in sharing🌸

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tdesantis | @tdesantis | Apr 18 9:23am

Hi. I am happy to hear this. I currently have a fractured rib due to one lesion they have found in that spot. I was diagnosed in August with Mets to liver and lung. And now that one rib.
I have pain in that rib. I am hoping it’s from the fracture and not the lesion. To hear you had 7 areas it must be so painful !! I am worried about the bones.

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kensiejames | @kensiejames | Apr 19 6:58am

🙏🏻🙏🏻🙏🏻

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Zebra | @californiazebra | Jul 22 3:06pm

Hi @leeann66
Someone mentioned an experimental med for a different cancer and it made me think of you. It has been almost 3 months since your last update. Just checking in to see if all is still going well.

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