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Anyone have cancer with unknown primary?

Cancer | Last Active: 1 day ago | Replies (128)

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@sambebb

My name is Sam. I live in wales in the uk. I was diagnosed with CUP the first week of February. I’m 54 with a 12 year old daughter that I gave birth to at 42. Only 1 and she’s a joy! We are in a rare group and the pathology is crucial although in so many cases they often never find the primary as someone says in a post, our immune system already killed it off but sadly after spreading. I have adonacarsenoma. Forgive poor spelling. It’s in my lymph nodes in pelvis and outer lining of stomach. They are treating me with chemo (4rounds) palliative and attacking it as if it is a gynaecology cancer (which I actually believe it is- was at the dr surgery all the time for over a year with elevated CA125 but they kept missing it and then the rash around torso in September- told was menopause. 😔 which it obviously wasn’t. I have double dose chemo paclitaxol and carboplatin. I’ve only done one round and next Tuesday I’ll go for the second. I’m eating a diet of cancer starving foods and take a lot of supplements plus IV vit C because I have to be able to tell my child that I did everything I could. She knows I have cancer but not how serious it is. As a Christian, I trust the Lord completely and despite the horrific experience of it all, know His blessings in abundance. He knows mine and my family’s future and that keeps me. Thanks for letting me be a part of your group and I’m so sad about the dear lady of 44. Praise God too for the wonder of 6/7 years on for the lady’s husband with CUP. We may be far away physically but we are close in our similar circumstances.

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Replies to "My name is Sam. I live in wales in the uk. I was diagnosed with CUP..."

I too have CUP also in my lymph nodes in pelvis. My cell type is squamous though. I have just finished my 4th cycle of chemo paclitaxol and carboplatin along with bevacizumab (avistin). After my 3rd scan I showed NED. I will be on the avistin for a total of 2 years as maintenance to keep everything at bay.
Be hopeful, I was where you were just a few months ago. I pray for you that this regimen works for you as well.