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Treatment options that have worked for Small Fiber Neuropathy
Neuropathy | Last Active: Apr 20 2:04pm | Replies (106)Comment receiving replies
John - I did read your post from May of 2020. I have numbness only no pain. Mayo gave me dx idiopathic sensory motor axonal PN. Damage to both small and large fiber. I see the protocol has worked to your advantage. Have you heard about protocol working with folks with damage limited to the axons? Your opinion would be helpful. I see others have tried protocol with some positive results and some uncertain results. I went on the protocol website and perhaps I missed it, but I did not see any reference to axonal PN. Ed
Replies to "John - I did read your post from May of 2020. I have numbness only no..."
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Hi Ed, I have seen a few posts in the groups Facebook page by doing a search of the group but like Connect it seems like everyone is a little different. From the FAQs on their website;
"Will this help any type of peripheral neuropathy?
Yes. Peripheral nerves respond exceptionally to this nutritional supplement formula that supports accelerated healing. Short fiber & long fiber axonal damage are encouraged to heal faster."
--- https://theprotocolworks.com/faq/
I wished the Facebook groups were a little more friendly for new members questions but I understand why they expect everyone to search the group posts before asking a question. You can join the FB group using the link on the website and search through posts. I did find a response to a member from the person who started the group mentioning his diagnosis of peripheral poly neuropathy involving the long and short fiber nerves.