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I have LCIS, anyone else?

Breast Cancer | Last Active: 4 days ago | Replies (78)
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@lc1sp123

That's wonderful to hear that you've had no further issues!
May I ask for how long you did the watchful waiting scans? How many years, and still no further issues?
Alternating mammos with MRI's? Or something else?
Did you have any biopsies in all that time (if so, that I assume were clear)?

I'm personally worried about all the scans, every six months. And more biopsies. Much too anxiety producing for me.

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Replies to "That's wonderful to hear that you've had no further issues! May I ask for how long..."
dlst | @dlst | Apr 17, 2024

I have PLCIS (pleomorphic LCIS). I would also like to know the answers to the questions lc1sp123 asked, if you have some time to reply. I just had my second lumpectomy. The first lumpectomy removed a 2mm tumor (invasive lobular cancer), but the margins were not clear, which is necessary for PLCIS. I will have 20 radiation therapies, but no chemo. Then five years of hormone-inhibiting drugs. I am told I will be followed up very carefully with some combination of MRI's and mammogram or ultra-sound.

Thanks for sharing your story.

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Colleen Young, Connect Director | @colleenyoung | Apr 21, 2024

@lc1sp123, have you heard the term "scanxiety". It's a real thing. You are not alone and may appreciated the tips members offer in these related discussions:
- Scanxiety: How did you get through scanxiety?
https://connect.mayoclinic.org/discussion/scanxiety/
- How can I defeat my anxiety about medical tests and surgery? https://connect.mayoclinic.org/discussion/how-can-i-defeat-my-anxiety-about-medical-tests-and-surgery/

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lesliesl | @lesliesl | Jun 16 7:35pm

How are both of you ladies now? Well I hope. I have just been diagnosed with LCIS and a few other benign issues in my right breast. I have gotten 2 opinions. 1 Dr. said he highly recommended bilateral mastectomy and the other hormone reducing medication and mammo and MRI rotating every 6 months. Part of me wants to do the meds and part of me wants to do the surgery and get rid of the stress. All of my grandparents and mother have had multiple kinds of cancers each. So far only a great aunt with cancer of breast.

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