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I have LCIS, anyone else?

Breast Cancer | Last Active: Aug 12 12:20pm | Replies (62)
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@lc1sp123

That's wonderful to hear that you've had no further issues!
May I ask for how long you did the watchful waiting scans? How many years, and still no further issues?
Alternating mammos with MRI's? Or something else?
Did you have any biopsies in all that time (if so, that I assume were clear)?

I'm personally worried about all the scans, every six months. And more biopsies. Much too anxiety producing for me.

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Replies to "That's wonderful to hear that you've had no further issues! May I ask for how long..."
dlst | @dlst | Apr 17 10:32pm

I have PLCIS (pleomorphic LCIS). I would also like to know the answers to the questions lc1sp123 asked, if you have some time to reply. I just had my second lumpectomy. The first lumpectomy removed a 2mm tumor (invasive lobular cancer), but the margins were not clear, which is necessary for PLCIS. I will have 20 radiation therapies, but no chemo. Then five years of hormone-inhibiting drugs. I am told I will be followed up very carefully with some combination of MRI's and mammogram or ultra-sound.

Thanks for sharing your story.

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Colleen Young, Connect Director | @colleenyoung | Apr 21 8:42pm

@lc1sp123, have you heard the term "scanxiety". It's a real thing. You are not alone and may appreciated the tips members offer in these related discussions:
- Scanxiety: How did you get through scanxiety?
https://connect.mayoclinic.org/discussion/scanxiety/
- How can I defeat my anxiety about medical tests and surgery? https://connect.mayoclinic.org/discussion/how-can-i-defeat-my-anxiety-about-medical-tests-and-surgery/

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