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← Return to CEA up - guessing not good
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Colorectal Cancer | Last Active: Jun 17, 2024 | Replies (24)
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She does get atropine and we are now doing lomotil every 6 hours. That worked well for round 2 but now on round 3 of Folfiri, it’s been pretty bad again the last 2 days. Didn’t start until after disconnecting the pump on Saturday and then bang. Had to cancel the udenyca shot yesterday because she was so nauseous and weak. Got there today but had to use a wheelchair and now that we are back home she is asleep. Completely wiped out. I know we are doing what we can but she made the comment on the way home that this is a horrible way to live. It just sucks.
Replies to "She does get atropine and we are now doing lomotil every 6 hours. That worked well..."
I'm still praying for you Chuck and your wife.
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I'm new to this group, hope my comments are helpful. Me stage 4 diagnos last july with tumors spread to liver, adrenals and lungs. I suffered wicked late onset diarrhea as well but I think I am finally getting the hang of it.
On chemo day I take 8 mg of dexamethazone and 8mg of zophran. At night I take 4mg of each then usually 4mg of zophran twice a day.
Key for my energy level is hydration, so I have a standing order for saline drip anytime I want it and use it often.
Plus I immediately change my diet to basically white: toast, yogurt, rice, cheese.
I was wiped out, had severe muscle wasting and couldn't walk, and probably felt like your wife is feeling now.
Now I'm driving, walking and have friends over for meals.