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CEA up - guessing not good

Colorectal Cancer | Last Active: Jun 17 3:28pm | Replies (24)

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@colleenyoung

@gmcnay52, "I run to can" as a nickname for irinotecan is a bit of dark humor - an apt nickname though.

@chuckmii, I hope you saw Gmcnay's post. Does your wife get any preventative medication before her chemo infusion to help control the diarrhea?

@gmcnay52, I look foward to getting to know more about you. What stage was your colorectal cancer? How much longer will you be on chemo? How are you doing?

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Replies to "@gmcnay52, "I run to can" as a nickname for irinotecan is a bit of dark humor..."

She does get atropine and we are now doing lomotil every 6 hours. That worked well for round 2 but now on round 3 of Folfiri, it’s been pretty bad again the last 2 days. Didn’t start until after disconnecting the pump on Saturday and then bang. Had to cancel the udenyca shot yesterday because she was so nauseous and weak. Got there today but had to use a wheelchair and now that we are back home she is asleep. Completely wiped out. I know we are doing what we can but she made the comment on the way home that this is a horrible way to live. It just sucks.