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Mesothelioma - no known asbestos exposure - compensation experience

Lung Cancer | Last Active: 1 day ago | Replies (31)
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@keisha2539

I live in Canada BC-77 yrs.pleural meso Did immno treatment but got extremely sick(hospital for 2 weeks) after 4-5?months on Chemo- did for 6-7 months now no spreading as per ct. Scan. You mentioned those new treatment TTF &HITHOC. Are they an option for your husband?? And is there anyway You can give me your Oncologist contact to forward to my oncologist. USA mayo is so advanced. Could you or her contact me so I can inform to my oncologist. I live in Kamloops British Columbia Canada. Hope to hear from you and good health and hugs to your husband. 💕Helena Byrd.

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Replies to "I live in Canada BC-77 yrs.pleural meso Did immno treatment but got extremely sick(hospital for 2..."
Colleen Young, Connect Director | @colleenyoung | Apr 16 12:34pm

Hi @keisha2539, please note that I removed your personal email from your message. Mayo Clinic Connect is a public forum and it is better to use the secure private message function.

I might also add that by sharing here in the forum, you are connecting with several people where all can benefit from the information and support shared.

Mayo Clinic has one of the largest mesothelioma practices. Read more here: https://www.mayoclinic.org/diseases-conditions/mesothelioma/doctors-departments/ddc-20375030
If you're interested in seeking a second opinion with Mayo mesothelioma experts, you can get started by clicking this link http://mayocl.in/1mtmR63
You can self-refer or ask your current oncologist to send a physician referral.

I think your question about TTF (Tumor Treatment Fields) and HITHOC (heated intrathoracic chemotherapy) was intended for @markymarkfl, correct.

Helena, I'm sorry to hear that chemo made you so sick. It looks like you were able to complete treatment (phew) and that spread has been stopped. Are further treatment options like immunotherapy an option for you? Are you on treatment now?

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sueligthart | @sueligthart | Apr 19 8:20am

I learned that the Toronto Cancer Hospital - Princess Margaret Center - developed the SMART treatment plan - and have success with it which has not been replicated elsewhere. This group of specialists is available.

I'm glad I am at the Mayo - and I have faith they will do everything they can - but it does not look good and that has been hard to hear but necessary to hear.

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