I’m so so sorry your poor daughter is going through all of this. In order for her to have a definitive diagnosis of Mals she first needs a cta of her celiac artery. It’s just a ct with contrast I had symptoms of Mals for about 5 years. After the 50 th time ending up in the er I begged for the cta. The attending was very compassionate and ordered it. Then I was referred to gi for barium swallow a test where you eat eggs with contrast in them and have x rays over a 4 hour period and recently a ph impedance test. Also referred to a vascular surgeon who specializes in Mals. She did a special ultrasound that confirms Mals. You have to advocate for your daughter. Which is sounds like you are. I’ve had to fight with my hmo to get approved for these tests. Your daughter is very sick and will get better! Just make sure you get stat referrals for these tests so she can get the help she needs asap!!! Good luck. I’ll pray for you both. Let me know how it’s going. If you have any questions just ask!!! I’ll do all I can to help you! Stay strong! Don’t take no for an answer.