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Prolia and Evenity Together

Osteoporosis & Bone Health | Last Active: Aug 14 4:46pm | Replies (54)

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@michaellavacot

Hi @gently - Thanks for responding. Of course individual treatment experiences are extremely valuable and I have learned a lot from those experiences. It is tough for a lot of people to share their stories and they are brave to do so.

From a reader perspective, one has to take all experiences with a grain of salt. When placebo adverse events are near equal to on drug events, you have to put everything into perspective. I have read and heard a lot of stories of people getting scared off of treatment just to have a spine or hip break a few years later, and then go on the drug they were scared off of in the first place.

I agree with you on reading trials thoroughly as the devil is in the details for these things. But if you are pushing a T-score of -4.5 and you get convinced that just changing the type of calcium you are taking is going to move the needle, you are headed for disaster.

Just based on what I have learned in the 20 short months since being diagnosed myself. 🙂

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Replies to "Hi @gently - Thanks for responding. Of course individual treatment experiences are extremely valuable and I..."

I agree it would be very difficult just changing calcium when you have a T score of -4.5 .
My spine T score is -4.6 and I fought off medications for 2 years and tried all types of natural modalities and now I am on Evenity .

Clearly you understand my response, because that's were you double down.
A readers perspective is not the same as a writer's perspective. Eat all the reader's salt you can take, but don't lasso together disparate, deeply felt experiences and throw salt at all of them. These members deserve of deep respect.