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Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Neuroendocrine Tumors (NETs) | Last Active: Oct 31 7:28pm | Replies (113)
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@lindabees

Congratulations on the great results! I’m so interested in the fact that you’re now on just the cap for maintenance as that is what my husband is also doing now. I hadn’t yet come across anyone on a similar regiment. My husband had almost 50% reduction in his mets while in captem and now after 3 rounds of cap he is stable. (primary was surgically removed 16 years ago) Hiw have your results been while in cap only?

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Replies to "Congratulations on the great results! I’m so interested in the fact that you’re now on just..."
Turkey | @tomrennie | Jul 12 8:41pm

I am doing great. On my 11th cycle of just capecitabine. My scan last Friday still showed no growth of my 4cm x 2cm pnet. The is no change in my liver lesions. Everything is still stable. I feel tired and have body aches the last few days,
but that is about it.

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