@debgio11
Hi, Deb. I am a 54 year old female with small fiber neuropathy, cervical spondylitic myelopathy, cervical and lumbar stenosis, poly neuropathy, Hashimoto’s/hypothyroidism, etc. I had ACDF surgery at c5c6 due to spinal cord compression and injury. I hear you on your frustration. I am getting a new neurologist end of April and need to ask for updated brain MRI, EMGs, nerve conduction testing, MRN, and bloodwork to rule out MS/CIDP/MSA. I have severe fatigue, weakness, numbness in arms/hands/legs/feet and spinal/hip pain/numbness. I am in bed or on the couch most of the day and can’t do much which is frustrating since I was always so productive and energetic. I am now not able to work and dealing with depression. I am a single parent of a teen and his sole provider. Scary! I also notice cognitive decline and difficulty focusing, reading, concentrating, etc. and having a hard time breathing deeply/singing (loved to sing at church). I do think there is a lot to small fiber neuropathy and autonomic nervous system dysfunction. My gallbladder stopped working (biliary dyskinesia) and feel other organs are not functioning optimally. I understand that CIDP needs a spinal tap to diagnose. It seems many neurologists do not know much about autonomic nervous system dysfunction since it affects so many organs and systems. I understand the EBV, HSV and COVID vaccines/infections negatively impact the CNS/PNS. Hang in there and keep advocating for yourself to get answers and treatment to improve your quality of life. I am struggling for the same.