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Sensory axonal polyneuropathy Results

Neuropathy | Last Active: Apr 15 9:25am | Replies (7)

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@joeys62

Has anyone had any experience with axonal sensory Polyneuropathy? I have been to two neurologist with no real explanations as to what to expect or no real information. Jan 30 the Dr told me that with PT I should be able to walk with my walker within 2/3 months. Ain't gonna happen...I now can't even stand.

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Replies to "Has anyone had any experience with axonal sensory Polyneuropathy? I have been to two neurologist with..."

Hi! I was never promised I could walk after a few months, but I tried. I too was given no medical explanation for the PN that hit suddenly. But I was in a wheelchair, had a lot of physical therapy to make me stronger. After 6 months I was out of the wheelchair. Today I use the walker when out, but walk unassisted inside the house and in short walks (albeit not the most gracefully). I keep a cane nearby. I drive!

So yes, some of us can get back on our feet with physical therapy. We need to keep our muscles strong! Wishing you the best success in living with this unfortunate condition, while trying to remain positive.

Hi @joeys62, I combined your discussion with an existing discussion titled, "Sensory axonal polyneuropathy Results" - https://connect.mayoclinic.org/discussion/sensory-axonal-polyneuropathy-results/.

I did this so you could meet @irisjolie who recently posted their experience with getting diagnosed with axonal polyneuropathy as well.