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Tymlos side effects I've encountered

Osteoporosis & Bone Health | Last Active: Oct 27 11:00am | Replies (284)

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@hardingv

I recognize that a dr may not know all of the practical details, but if your dr really thought the Tymlos pen had a permanently attached needle that would concern me.

That is pretty basic, and if the dr is not familiar with that detail, what about the info on options needed to help address adverse effects?

I believe Tymlos will say the needle should be a minimum of 5/8" long (I forget the gauge), and will also say to inject in the stomach and won't express an opinion that other locations are OK because that was what was done in their studies.

A typical specialist will be able to judge that (alternating) hip injection is OK. Similarly, my original endo ordered 3/8" needles instead of the minimum 5/8" to avoid some issues I had. (And she certainly knew that the needles were one shot disposables so there is an ability to adjust by switching needles.)

The dr's level of knowledge could become important if you experience side effects. For example, Tymlos doses are adjustable. When someone can't tolerate the full 80 mcg (8 clicks) they might try a lower dose. (See attached pics)

Personally, assuming this was not just a miscommunication, I would look for someone else with current expertise in managing bone disease, particularly with respect to osteo drug options.

Good luck!

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Replies to "I recognize that a dr may not know all of the practical details, but if your..."

Thanks you. I didn’t speak to the doctor, I spoke to someone in his office. I’m hoping there was a miscommunication. She sounded very frustrated by my questions. She did tell me it came with the needle but made it sound like it was already attached. When I started asking questions she told me to make an appointment with the doctor.

I am looking for a new doctor, preferably an endo but most do not get very good reviews here, so may try Mayo. With other doctors I can ask questions without an appointment or go through the portal. I can use the Tymlos nurse for questions.