Collagenous Colitis Relapse
I was diagnosed with Collagenous Colitis last October. Was prescribed 9 mg daily of Budesonide and did really well on that until I was on the second week of the taper at 3 mg a day when I relapsed. Was returned to 9 mg daily on 1/6/24 and started taper to at 6 mg on 2/6. It's two weeks later and I have relapsed again. Original dosing schedule was 9 mg daily for 6 weeks, 6 mg daily for 2 weeks, 3 mg daily for two weeks. What has been your experience with this version of microscopic colitis and tapering off Budesonide? What dietary changes helped you? Any other thoughts/suggestions? Thanks!
Interested in more discussions like this? Go to the Digestive Health Support Group.
@lethbridge
I have sourdough not gluten free bread with my eggs so not a problem. Also, hard cheese is not a problem for me but cream cheese is a problem. I eat Lactose free milk, yogurt and sour cream. Other than what ive listed here is trial and error. Rich foods eg all forms of chocolate, ice cream, creamy soups, sauces, anything rich. I limit beef and eat fish, chicken and vegetarian. I also found deep fried foods and all caffeine are problematic. Hope this hel
Oh that is super helpful. I'm wondering if others find eggs a problem. Thank you for any and all replies.
I don’t know of any associations with dairy. If you’re in the midst of it, I suppose it could worsen symptoms. But I don’t believe it either causes or arrests the condition.
Yea what she said makes sense. Stay away from rich things that are gassy or that worsen diarrhea under ordinary circumstances
Everyone has different triggers so eggs might be yours. The only way to tell is to go off them and see if you get any improvement. If nothing changes you’ll know it’s not eggs. If that’s the case, I’d suggest going gluten-free for a couple of weeks. I have read that this is a trigger for a lot of people with microscopic colitis.
I was thinking about your post - do you eat raw vegetables, beans, or a lot of broccoli or other cruciferous veggies? I have found that raw vegetables can be a problem and beans for me are a definite no unless I cook dried beans after a 24 hour soak.
Just something else to consider
Thank you all so much, I am still learning and your comments are so helpful. So eggs might be a trigger, but I can check that. I'm avoiding raw fruits and veggies, only well cooked for now. But I miss green salads so much!