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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: 1 day ago | Replies (391)
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@crystalc13

Hi, I was just diagnosed with Arachnoiditis & will be going thru a spinal stimulator trial period. If the trial is successful, I will be getting one surgically implanted. Has anyone else tried a spinal stimulator? If so, please let me know if it was successful or not. Thank you!

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Replies to "Hi, I was just diagnosed with Arachnoiditis & will be going thru a spinal stimulator trial..."
phxratt1 | @phxratt1 | Apr 14 10:36pm

Hi, I'm a 65 y.o. male who's had 3 back surgeries. Your post really caught my eye. How did you get diagnosed? Was it after an MRI? I am hoping to do an SCS trial myself. I'm thinking my pain is from scar tissue. Did you have a surgery or trauma that caused the arachnoiditis? Best of luck to you.

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Sophie46 | @sophie46 | Apr 15 11:55am

I had a horse riding accident and crushed L1. Since then I have had three back surgeries. During the last surgery my dura was cut and I had a spinal fluid leak. From this I developed Adhesive Arachnoiditis and Tarlov Cysts. I tried a Spinal Cord Stimulator, but unfortunately they were only able to insert one wire instead of two. For the first year my pain was less and I was able to walk a long way. Then suddenly, I lost the ability to walk and the pain returned. I tried different programs, but could not find one that worked well for me. The doctor refuses to remove the battery.

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