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Am I getting the best treatment for my SFN?

Neuropathy | Last Active: Apr 15 12:18pm | Replies (8)

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@johnbishop

Welcome @debgio11, You are not alone in your quest to find an answer to your question am I getting the best treatment for my SFN. I think that many of us have struggled with that question at one time or another and may still be trying to find an answer. My best suggestion would be to continue what you are doing now by learning as much as you can about your condition and what treatments are available that may offer some relief. There are quite a few discussions that have been started by members on a quest for an answer to what helps. You might want to look through the list of discussions and comments by other members to see if something sounds like it might help. Here's a link with the search results - https://connect.mayoclinic.org/search/discussions/?search=small%20fiber%20neuropathy%20what%20helps.

It sounds like you've seen a lot of different doctors through the years and the IVIG therapy didn't help much if any. You mentioned that you are waiting to see your doctor when they return from vacation. Have you thought about seeking help or a second opinion at a teaching hospital?

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Replies to "Welcome @debgio11, You are not alone in your quest to find an answer to your question..."

I haven’t had IVIG actually. I just finished a 5 day course of IV steroids, which seemed to make all my autonomic SFN symptoms worse.