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← Return to Low Risk IDC w/ Baseline Multiple Painful Conditions
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Low Risk IDC w/ Baseline Multiple Painful Conditions
Breast Cancer | Last Active: Apr 14 4:04pm | Replies (22)Comment receiving replies
Thanks so much--this is good to know. I'm very glad you have the palliative care referral. I have a good friend who is a palliative care nurse and she really believes it helps quality of life. I hope you get all the pain control you need. Can you check in again if it isn't too much trouble after May 1 and tell me how it is going? Palliative care referral is first thing on my back-up list if/when I need it. Right now my PCP is prescribing pain control, but every so often he wants to double check why I am on it (and honestly that makes me panic, even though so far so good). Your note came at a good time--today is "housecleaning" and even though my husband does the heavy work it is challenging for me. And yet I still want to do because it makes me feel "normal." But I have to stretch a lot and then soak in epsom salts, even for just ordinary housework. So thank you for the reminder of palliative care and also for a feeling of not being alone. Take care.
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It can be a very difficult and lonely existence. My arachnoiditis specialist once told me that it's pain is worse than that of stage4 bone cancer without the release of death. Some days this is true. My faith and my family keep me here. I'd be happy to report back after my palliative evaluation. I hope I have good news for you as you sure don't need the stress of wondering what will happen to you if your primary wasnt able to help you. I'm worried that they may not accept me because my painful diseases won't be on any list of approved diagnoses even though I'm in my bed or my recliner most of the time due to pain. I can't sit, stand or walk without pain but i do my dishes and laundry anyway. When I go for health care visits or to see part of my grandsons baseball games, I'm done for the day. I don't know how I'm going to make the radiation visits every day. Maybe they would let me wait to start radiation until after May 1st when my pain is, hopefully, better controlled. Take care and I'll be in touch. Thank you for getting back to me!