Scott-- I had the infusions for something else, but DO check your insurance before getting them as infusions are VERY expensive.

I get IVIG infusions every three weeks for CIDP. At first I took Tylenol and Benadryl before the infusions. Now they give me Tylenol and Zyrtec. Has anyone had a positive experience with Tylenol and Zyrtec before the infusions?

I was on IVIG therapy from age 10-18. I went off of it when I went off my parts insurance. It worked wonders. I will tell you something else that is working. The United States isn’t there yet. I am using alpha lipoic acid. In Germany where my husband is stationed they use IV alpha lipoid acid. I have a lot of drug allergies so they started me off slow. I ordered the pills through Krogers Pharmacy I could not find it on the shelf.
https://www.webmd.com/vitamins/ai/ingredientmono-767/alpha-lipoic-acid

@scott22
I am in New England, too, and understand MGH has neurologists who can help give you options for treatment of neuropathy. I was going to go there in 2017 but did not and wish I did. I was diagnosed with idiopathic small fiber neuropathy which has worsened from feet and calves to legs, arms, hands, autonomic nervous system, etc. I see a new neurologist at the end of April and will go to MGH if I don’t feel I am getting the best care for diagnosis and treatment.

I don't pay a penny for IVIG or now SCIG infusions on a Medicare Advantage plan. I thought Medicare is covering it these days.
I’ve been on it since 2020 and I would not have a life without it, but I have CIDP not idiopathic.