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@esikora

How long have you been symptomatic? What was it that led your doctor to suspect an adrenal tumor?
Best of luck in resolving this.

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Replies to "How long have you been symptomatic? What was it that led your doctor to suspect an..."

Actually, I was tested for this back in 1996 after I went to the ED after following the use of a new antihypertensive for treatment of my BP; I saw a cardiologist out of the area, and she gave me samples of Plendil, which is a fast-acting calcium channel blocker, but after taking just one dose later in the day, I developed reflex tachycardia, and a headache that lasted for quite some time, so my mother finally took me to the ED. I was admitted to the cardiac telemetry floor for the next 5 days. The doctor whose care I was under before this admission said that I would be only the second person in his 25 years of practice to be dxed with a pheochromocytoma if I were, in fact, found to have one. Unfortunately, the 24 hour urine collection was initiated a day too late. It was negative for elevated epinephrine and norepinephrine, and I wasn’t surprised, because I don’t have sustained attacks, and I thank God for that, because I wouldn’t be here if I did. I was led to believe I didn’t have this, and I would undergo testing at least two more times on an outpatient basis, and both times they came back negative, because the urine was collected when a spell was not occurring and the other test collection error when I was having a spell, but that time I delivered the specimen to my local hospital’s lab where some tech took it from me and laid it on a stainless steel table, and I told him it had to be refrigerated, because otherwise the adrenaline would degrade. He said it would be fine, and that the lab people would be in a little while. Well, it wasn’t fine, and it was also under bright fluorescent lights, which further degrade adrenaline levels. Even though I also experienced what is commonly called the triad of symptoms with regard to “pheos” I was told I didn’t have this. My father died suddenly after returning home from work at the age 62, and I was told by a doctor a year ago that with a high degree of probability my father most likely died from a pheochromocytoma induced stroke/heart attack. I would have preferred having this discovered and removed when I was 43, but better late than never, so I’m grateful for it’s presence finally be elucidated. I was in the hospital in 2021, and the urine collection would be done again, but this time the levels were quite elevated, and I did have imaging, but it was the wrong imaging study, thus, even though the tumor is there, it wasn’t seen. The test I’ll be having on the 26th is specific and a contrast agent will also be used, so I’m hopeful. Sorry this turned into a book.