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Is everyone with pNETs on creon?

Neuroendocrine Tumors (NETs) | Last Active: Apr 26 11:19am | Replies (20)

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@janmar1960

Hi . I have small bowel net and did start on creon due to pale stools suggesting i wasnt absorbing all the nutrients in food . After 1 month I decided to stop as I felt a bit unwell. Whether it was the creon I don't know but I thought that I may have over exaggerated the pale stools as sometime they were ok . After discussing with my oncologist he agreed we pause for a while.

I understand they are just a substitute enzymes produced from pigs pancreas so should be fine to take.
I would check the creon website for sll the details of side effects etc.

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Replies to "Hi . I have small bowel net and did start on creon due to pale stools..."

Hello @janmar1960 and welcome to the NETs discussion on Mayo Connect. I appreciate you adding to this discussion group with your experiences.

As you are new to Connect, please share a bit about your history with NETs. For example, how long ago were you diagnosed? What type of treatments have you had, such as surgery, monthly injections, etc.

I look forward to getting to know you.