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Pet Scan Results - Looking for layman answers.

Lung Cancer | Last Active: Apr 18 1:35pm | Replies (12)

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@flusshund

@lori734, take a deep breath. Any mention of the possibility of lung cancer is scary for sure, but it's no longer a death sentence. I've been living with Stage 4 for 3 1/2 years, and no one can tell unless I mention it.

The most recent research I've seen indicates they won't even treat a nodule under 1.0 cm, so these are very small nodules you're referring to. An adenoma is benign.

The fact that your doctor's visit is scheduled for a month from now indicates your doctor is not overly concerned. Is your doctor an Oncologist? If not, you should spend your time finding the best in your area. I've moved since my original diagnosis, so I had to go through finding one in a new part of the country. I've always started my search with healthgrades.com.

If you're comfortable with research, you can really dive in by going to iaslc.org, the website of the International Association of Lung Cancer. Click on "Research & Education" and then "Lung Cancer 360," where you'll find papers, courses, and over 200 podcasts. My Oncologist and I use this resource to keep up with the current lung cancer treatments, diagnoses, and research. I'm starting as a patient research advocate, providing the patient/caregiver/public perspective to lung cancer researchers, and I've been a patient advocate for several years.

I've just got to say, take anything you find in a general Google search with a huge grain of salt. I stick to the recognized medical authorities such as Mayo Clinic, Cleveland Clinic, MD Anderson, Johns Hopkins, and the like.

I'm not an Oncologist, but I don't believe your diagnosis is urgent. The mediastinal is the only one I see to keep aware of. The mediastinal region is in the middle of your torso, about halfway between from and back and between the lungs. It's a crowded region.

I always think it's a good idea for patients, myself included, to keep in touch with our doctors. If you're concerned, they should be the first person you turn to. Good doctors are as concerned with your mental well-being as they are with your physical well-being.

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Replies to "@lori734, take a deep breath. Any mention of the possibility of lung cancer is scary for..."

Thank you for reminding me to take a deep breath and the advice on Dr. Google. I am also suffering from a tremendous amount of guilt and regret for smoking both cigs and pot for many years. Thought I was invincible and didn’t really care what happened to me. Now I’m 64 and wanting to live life and this happens. So the emotions are all over the place.

I was referred to a pulmonologist after my low dose ct and ct with contrast showed the nodules had grown since my last ct a year ago. I met with him and he scheduled a bronchoscopy for the first part of May. Since I met with him last week, I have had a PET scan and received the information stated above. I haven’t talked to him since the results of the PET scan were complete and I don’t know if those results would change the need for the bronchoscopy.

Thank you for the research info. I will definitely check that out and avoid Dr. Google.