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Azithromycin, Ethanbutol, & Rifampin Drug Therapy for MAC
MAC & Bronchiectasis | Last Active: Nov 3 10:53pm | Replies (126)Comment receiving replies
I was warned that this would not be fun and it certainly isn't .Drs said I might have had this for years and I never had any symptoms still don't but am now on two meds ..ethambutol and anzithromycin .and I feel terrible .I don't know how much more I can take ..only took them on advice that the cachexia I now have will go by doing the meds ..it took me a month of very low dose of ethambutol to start since I'm down to 80 lbs .and then bumped up to two pills per night ...took a month to get used to that ,now the anzithromicin is a half dose and my appetite is now totally gone !!! So back to not eating .Seeing Dr on Mon and hoping he has the good sense to put me on a three times a week schedule so I can take a day off now and then .This every day thing is killing me ..18 months of this ??? No way I nor my husband can handle this !!!😥
Replies to "I was warned that this would not be fun and it certainly isn't .Drs said I..."
Couldn't you go on three times a week by yourself? The doctors know a great deal, but are also sorting all of these things out, and there is not perfect equation often.
Mokie
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My experience with azithromycin, ethambutol and rifampin was not good. Azithromycin caused hearing loss after 2 months of taking it. My ophthalmologist warned me that ethambutol could affect my vision.
My experience with clofazamine as a substitute was also bad, because it caused intestinal blockage.
I am not on any treatment now; only nebulizer for air clearance.
The antibiotics were not tolerable for me.