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Anyone had swelling of ankles/feet and calves with neuropathy?
Neuropathy | Last Active: Oct 27 5:03pm | Replies (34)Comment receiving replies
Weakness in my arms, hands and legs. By the time I had the surgery I was almost dragging my left leg. Now have weakness issues in my arms and legs, balance issues, and can no longer hold my urine or hold my bowels sometimes. Also it doesn't help that my lower back is very weak and i have sort of lost my desire to try and exercise. Thanks for your suggestions. It is much appreciated.
Replies to "Weakness in my arms, hands and legs. By the time I had the surgery I was..."
@kevinversace55
If you haven’t had a neurologist test you with EMGs, nerve conduction studies, MRIs, MRNs (to map and check nerve damage/function) plus the small fiber biopsy since your surgery, it would be good to do this to determine the source of your neurological symptoms to determine treatment options (not just medications). If your CNS/PNS is being compressed/pinched, you want to prevent further, permanent damage. I need to be tested for MS, CIDP, MSA and neurogenic orthostatic hypotension to see what is causing my constellation of symptoms. I am really struggling with extreme exhaustion/fatigue, limb weakness, balance/dizziness, visual challenges (hard to focus eyes/read), numbness and pain in my arms/hands/legs/feet. I seem to have flares of worsening symptoms and not sure the trigger (autoimmune, virus, etc.). I do believe viruses that lay dormant in your nerve ganglia (EBV, HSV, COVID, etc.) can cause many health issues and symptoms over time.
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@kevinversace55
I feel for you and can empathize with the difficulty of having to struggle each day with weakness and balance issues. I am not the same person I was a few years ago. I used to be so productive and energetic and now reduced to a shell of my former self. I am on the couch or in bed most of the day and have not energy or motivation to do much of anything. I used to care about so much and now don’t seem to care about anything.